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Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions

  • Program Name:Long-term Follow-up for SCID and other NBS Conditions
  • Activity Code:U1W
  • Application Available:3/3/2021
  • Application Deadline:5/3/2021
  • Created By:Wildberger, William
  • Created On:1/31/2020
  • Last Updated by:Wildberger, William
  • Last Updated On:3/3/2021
  • Estimated Project Start Date:8/1/2021

 Details of the changes posted in this announcement

Not Available

 Announcement Information

Announcement Number HRSA-21-079
Announcement Code
CFDA Number 93.110
Provisional No
Activity Code U1W
Competitive Yes
Fiscal Year 2021


This notice announces the opportunity to apply for funding under the Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions program. The goal of this program is to ensure that newborns and children identified through newborn screening (NBS) achieve the best possible outcomes by expanding the ability of state public health agencies to provide screening, counseling and services to these newborns and children and to collaborate with clinicians, public health agencies and families to create a system of care that can assess and coordinate follow-up and treatment of newborn screening conditions.1 This NOFO supports this goal by making available funding to support comprehensive models of long-term follow-up (LTFU) that demonstrate collaborations between clinicians, public health agencies, and families.

 Legislative Information

42 U.S.C. § 300b-8(a)(1) and (a)(4) (Title XI, §1109(a)(1) and (a)(4) of the Public Health Service Act)

 Application Information

Application Available 03/03/2021
Application Deadline 05/03/2021
Supplemental Application Deadline N/A
Explanation for Deadline N/A
Archive Date 07/02/2021
Letter of Intent Not required
Application Package SF424
Allow Applications to be Reopened in EHBs No
FOA Available Yes
Competitive Application Types Supported New
Allow Electronic Submission N/A
Page Limit for Application
Allow Multiple Applications
from an Organization from
Electronic Submission Instruction Electronic submission is/will be available in Grants.Gov

 General Information

Projected Award Date N/A
Estimated Project Period N/A
Estimated Project Start Date 08/01/2021
Estimated Project End Date 07/31/2023
Estimated Amount of this Competition $3,000,000.00
Estimated Number of Awards 6
Estimated Average Size of Awards $500,000.00
Cost Sharing No
Cooperative Agreement Yes

 Contact Information

Name Mabatemije Otubu, RN, MPH
Phone Number (301)594-4462

 Download Information

Expand FOA (Guidance) Attachment (Maximum 1)
Document Name Size Date Attached Description
MCHB HRSA-21-079 (U1W) LTFU NBS_Final.pdf 386 kB 03/03/2021
Expand Application Package (Maximum 1)
No documents attached
Expand User Guide (Maximum 1)
No documents attached

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